Patient Caregiver Advocacy

NLMSF Patient-Caregiver Advocacy Roundtable 
Within the LMS community, everyone has a unique experience and sharing our narratives empowers the storyteller and all those who listen.  Within the sarcoma community, those individual voices that unite to serve as a core transformative component for the care paradigm with an emphasis on patient experience.  This network can generate recommendations for changes to the standard of care—from initial diagnosis to end of treatment that will create a legacy for those patients and caregivers who come after us. 

This is a Patient Work Group – with a goal to impact care by sharing your actionable suggestions with the oncology care and research communities. An LMS Community “think-tank” in which your voice will be important, and will be heard by the Oncology Care Community, the Research Community, to impact changes in care and precision research and clinical trial design. You won’t be disappointed in the results of your commitment to “change the story” on survivorship.